Ethics self-assessment for genetic and genomic research
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Patients are key stakeholders in genomic research. On January 18, the SIENNA project organised a webinar to present our proposal for operational guidelines for ethical self-assessment of research in genetics and genomics. The webinar was designed to enable patient organisations, patient advocates, patients and their to give informed input in this process. A recording is now available on YouTube!
The SIENNA project has developed stakeholder informed proposals for the ethical management of new and emerging technologies. The operational guidance for ethical self-assessment of research in genetics and genomics is one of them.
In the webinar, Senior Professor Mats G. Hansson, Uppsala University, leader of the SIENNA project's work stream for human genomics presented the proposal for operational guidelines for an ethical self-assessment of research in genetics and proposal as part of our open public consultation that ended on January 25, 2021.