Programme
The SIENNA final conference was held between 10-12 March 2021. Over three days, we addressed instruments like regulation, innovation policies, research ethics frameworks, Ethics by Design methodologies, education and training progammes, standards, and certification. Here, we will present and discuss results of the 3,5 years of work that the SIENNA project has conducted. The conference consisted of four parts, which could be attended separately.
Wednesday, 10 March
13:00-14:00 CET Introduction to the SIENNA project
13.00 | Introduction to the SIENNA project and the workshop Philip Brey, Professor of Philosophy of Technology, University of Twente With a word of welcome by Isidoros Karatzas, Head of the Sector for Ethics and Research Integrity, European Commission |
13:15 | Brief overview with key finding: AI & robotics, human enhancement, human genomics, and general approaches Anaïs Resseguier, PhD, Senior Research Analyst, Trilateral ResearchYasemin J. Erden, Assistant Professor, University of Twente Amal Matar, MD, PhD, Post Doc, Centre for Research Ethics & Bioethics, Uppsala University Philip Brey, Professor of Philosophy of Technology, University of Twente |
14:00-17:00 CET Human Genetics and Genomics: Ethical, legal and human rights challenges
14.00 | Introduction Mats Hansson, Senior Professor of Biomedical Ethics, Centre for Research Ethics and Bioethics at Uppsala University |
14.05 | Anna Falk, Associate Professor of Stem Cell Biology, Department of Neuroscience at Karolinska Institutet, Stockholm. |
14.35 | Q&A |
14:45 | Keynote: What would patients and patient organisations need regarding the regulation of genomic research? Tamara Hussong Milagre, President of the patient association EVITA - Hereditary and member of ePAG Council at European Reference Network GENTURIS, Lisbon, Portugal |
15:15 | Q&A, biobreak |
15:30 | Keynote: Research and human rights from a privacy perspective: in benefit of the patient? Olga Tzortzatou, Attorney at Law, Biomedical Research Foundation of the Academy of Athens (BRFAA), Greece |
16:00 | Q&A |
16:10 | Proposal of a Code of Conduct for genomic research Amal Matar, MD, PhD, Post Doc, Centre for Research Ethics & Bioethics, Uppsala University |
16:40 | Bringing ethics reflection back to researchers - Concluding remarks Mats Hansson, Senior Professor of Biomedical Ethics, Centre for Research Ethics and Bioethics at Uppsala University |
17:00 | End |
Thursday, 11 March
09:30-12:30 CET Human Enhancement: Ethical, legal and human rights challenges
09:30 | Human enhancement ethical analysis, including Q&A Philip Brey, Professor of Philosophy of Technology, University of Twente |
10:30 | Break |
10:40 | Human enhancement: ethics guidelines, regulatory and policy recommendations, including Q&A Yasemin J. Erden, Assistant Professor, University of TwenteKonrad Siemaszko, Lawyer, Helsinki Foundation for Human Rights |
11:40 | Panel discussion: future strategies for human enhancement, ethics and human rights Lesley-Ann Daly, CyborgNestChristopher Coenen, Karlsruhe Institute of Technology Marc Roux, President of the Association Française Transhumaniste - Technoprog Yana Toom, Member of European Parliament, STOA member |
12:30 | End |
13:30-17:30 CET Artificial Intelligence and Robotics: Ethical, legal and human rights challenges
Friday, 12 March
13:00-17:00 CET Governance of emerging technologies: incorporating ethics and human rights
13:00 | Keynote: Toward the Comprehensive Governance of the Bio/Digital Revolution Wendell Wallach, Yale University and The Hastings Center, USA |
14:00 | Introduction to a general governance approach Philip Brey, Professor of Philosophy of Technology, University of Twente |
14:20 | Break |
14:40 | Dimensions of responsible governance I, including Q&A - Multistakeholder approach - The role of ethics guidelines- Ethics by Design Philip Brey, Professor of Philosophy of Technology, University of Twente Yasemin J. Erden, Assistant Professor, University of Twente Brandt Dainow, PostDoc, University of Twente |
15:45 | Break |
16:00 | Dimensions of responsible governance II, including Q&A - Connecting ethics and policy Nicole Santiago, Senior Research Analyst, Trilateral Research |
16:20 | Roundtable discussion: Ethics, human rights and the challenge of future emerging technologies Wendell Wallach, Yale University and The Hastings Center, USAAnaïs Resseguier, PhD, Senior Research Analyst, Trilateral Research Nicole Santiago, Senior Research Analyst, Trilateral Research Amal Matar, MD, PhD, Post Doc, Centre for Research Ethics & Bioethics, Uppsala University |
16:50 | Closing words Albena Kuyumdzhieva, Programme Manager Ethics and Data Protection, European Commission Philip Brey, SIENNA coordinator |
17:00 | End |