Public consultation on ethical guidance for genomics, human enhancement, artificial intelligence and robotics
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New technologies challenge our notions of what is ethical. The SIENNA project has developed stakeholder informed proposals for the ethical development, deployment and use of new and emerging technologies. Between 11-25 January we invite you to a public consultation of a group of documents with concrete ethical guidance for human genetics and genomics, human enhancement, artificial intelligence and robotics! Want an invitation? Subscribe to our newsletter to make sure you receive information the minute the documents become available.
Go to public consultation (Link removed)
The documents include:
Human genomics
- Operational guidance for ethical self-assessment of research
Human Enhancement
- Ethical guidelines for research, development & application of human enhancement
- Proposals for the creation of an appropriate body to oversee and analyse trends towards human enhancement, assess moral and social consequences, provide information and advice.
Artificial intelligence & robotics
- Ethics by design & ethics of use approaches for AI, robotics & big data
- Industry education and buy-in
- AI ethics education, training and awareness raising
- Ethics as attention to context: recommendations for AI ethics
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Webinar for patients and publics on 18 January
Most genetic disorders are rare and research is necessary to develop treatments for future patients. The SIENNA project has developed stakeholder informed proposals for the ethical management of new and emerging technologies. One of these proposals is an operational guidance for ethical self-assessment of research in genetics and genomics. Patients are key stakeholders for this research. Therefore, the SIENNA project invites patient organisations, patient advocates, patients and their carers to a webinar explaining the proposal with the aim to ensure patients are able to give informed input in this process.
In this webinar, Senior Professor Mats G. Hansson, Uppsala University, leader of the SIENNA project's work stream for human genomics will present the proposal for operational guidelines for an ethical self-assessment of research in genetics and genomics. The self-assessment should be carried out by the researchers' themselves. This proposal is currently undergoing public consultation and we are seeking input form patient organisations. In this webinar, the proposal will be presented in for a lay audience, and there will be an opportunity to ask questions before submitting your response.
The webinar will be held on Zoom. This is an open event, but registration is needed. We look forward to your questions and your input!