Publications from the SIENNA project

The SIENNA project is starting to produce results that will be published both in public deliverable reports and peer-reviewed journals. You will find a complete list here, and, as our work progresses, you will also find separate lists for the ELSI of Human Genomics, Human Enhancement and AI & Robotics

Public deliverable reports

SIENNA methodology

Rowena Rodrigues, Stearns Broadhead, et al. (2018), SIENNA D1.1 The consortium's methodological handbook, Public deliverable from the SIENNA project. (Version V0.4, revised October 2019)

State-of-the-art Reviews

Heidi Howard, Emilia Niemiec, & Alexandra Soulier. (2019). SIENNA D2.1: State of the art review of human genomic technologies (Version V0.4). Zenodo.

Sean R. Jensen, Saskia Nagel, Philip Brey, Tanne Ditzel, Rowena Rodrigues, Stearns Broadhead, & David Wright. (2018). SIENNA D3.1: State-of-the-art Review: Human Enhancement (Version V1.1). Zenodo.

Philip Jansen, Stearns Broadhead, Rowena Rodrigues, David Wright, Philip Brey, Alice Fox, & Ning Wang. (2019). SIENNA D4.1: State-of-the-art Review: Artificial Intelligence and robotics (Version V.04). Zenodo.

Legal analysis

Santa Slokenberga, Konrad Siemaszko, Zuzanna Warso, & Heidi C Howard. (2019). SIENNA D2.2 Analysis of the legal and human rights requirements for genomics in and outside the EU (Version V2.0). Zenodo.

Zuzanna Warso, & Sarah Gaskell. (2019). SIENNA D3.2: Analysis of the legal and human rights requirements for Human Enhancement Technologies in and outside the EU (Version V2.0). Zenodo.

Rowena Rodrigues, Konrad Siemaszko, & Zuzanna Warso. (2019). SIENNA D4.2: Analysis of the legal and human rights requirements for AI and robotics in and outside the EU (Version V2.0). Zenodo.

Surveys of research ethics committee approaches and codes

Heidi Howard, Emilia Niemiec, Lisa Tambornino, & Dirk Lanzerath. (2019). SIENNA D2.3: Survey of REC approaches and codes for genomics (Version V0.5). Zenodo.

Lisa Tambornino, & Dirk Lanzerath. (2019). SIENNA D3.3: Survey of REC approaches and codes for human enhancement (Version V3.0). Zenodo.

Lisa Tambornino, Dirk Lanzerath, Rowena Rodrigues, & David Wright. (2019). SIENNA D4.3: Survey of REC approaches and codes for Artificial Intelligence & Robotics (Version V1.0). Zenodo.

Ethical analysis

Alexandra Soulier, Emilia Niemiec, & Heidi Carmen Howard. (2019). SIENNA D2.4: Ethical Analysis of Human Genetics and Genomics (Version V0.3). Zenodo.

Sean R. Jensen. (2020). SIENNA D3.4: Ethical Analysis of Human Enhancement Technologies (Version V1.1). Zenodo.

Philip Jansen, Philip Brey, Alice Fox, Jonne Maas, Bradley Hillas, Nils Wagner, … David Douglas. (2020). SIENNA D4.4: Ethical Analysis of AI and Robotics Technologies (Version V1.1). Zenodo.

Public opinion surveys

Tim Hanson. (2020). SIENNA D2.5: Public views on genetics, genomics and gene editing in 11 EU and non-EU countries (Version V4). Zenodo.

Marie Prudhomme. (2020). SIENNA D3.5: Public views of human enhancement technologies in 11 EU and non-EU countries (Version V4). Zenodo.

Rebecca Hamlyn. (2020). SIENNA D4.5 Public views on artificial intelligence and robots across 11 EU and non-EU countries. Zenodo.

​Citizen panels

Kantar (Public Division). (2019). SIENNA D2.6: Qualitative research exploring public attitudes to human genomics (Version V3). Zenodo.

Kantar (Public Division). (2019). SIENNA D3.6: Qualitative research exploring public attitudes to human enhancement technologies (Version V3). Zenodo.

Kantar (Public Division). (2019). SIENNA D4.6: Qualitative research exploring public attitudes to AI and robotics (Version V3). Zenodo.

Enhancing legal frameworks

Konrad Siemaszko, Rowena Rodrigues, & Santa Slokenberga. (2020). SIENNA D5.6: Recommendations for the enhancement of the existing legal frameworks for genomics, human enhancement, and AI and robotics (Version V2.0). Zenodo.

Ethical frameworks

Mats Hansson, & Solveig Fenet-Chantereau, SIENNA D2.7 Proposal for an ethical framework for the assessment of genomics technologies and for research in genetics and genomics. Submitted public deliverable from the SIENNA project, awaiting approval from the European Commission

Michael Kühler, Nils-Frederic Wagner, Philip Brey, Sean R Jensen, Saskia Nagel, & Anna-Carolina Zuiderduin, SIENNA D3.7 Proposal for an ethical framework for human enhancement, Submitted public deliverable from the SIENNA project, awaiting approval from the European Commission.

Philip Brey, Philip Jansen, Jonne Maas, Björn Lundgren, Anaïs Resseguier, SIENNA D4.7 An Ethical framework for the development and use of AI and robotics technologies, Submitted public deliverable from the SIENNA project, awaiting approval from the European Commission. 

Communications related deliverables

Josepine Fernow, et al. (2017) SIENNA D7.1 Press release, WP7 Communication and dissemination, Public deliverable report from the SIENNA project

Josepine Fernow, et al, (2017) SIENNA D7.1 Website launch, WP7 Communication and dissemination Public deliverable report from the SIENNA project

Josepine Fernow, et al, (2017) SIENNA D7.3 Communication and dissemination plan, WP7 Communication and dissemination Public deliverable report from the SIENNA project

Josepine Fernow, & Anna Holm (2019) SIENNA D7.4 Interim Report on communications, WP7 Communication and dissemination Public deliverable from the SIENNA project

Publications in scientific journals

  • de Araujo, Marcelo

    The Ethics of Genetic Cognitive Enhancement: Gene Editing or Embryo Selection?

    Part of Philosophies, 2020.

    Open access
  • Rességuier, Anaïs; Rodrigues, Rowena

    AI ethics should not remain toothless!: A call to bring back the teeth of ethics

    Part of Big Data and Society, 2020.

    Open access
  • Niemiec, Emilia; Howard, Heidi Carmen

    Ethical issues related to research on genome editing in human embryos

    Part of Computational and Structural Biotechnology Journal, p. 887-896, 2020.

    Open access
  • Niemiec, Emilia; Howard, Heidi Carmen

    Germline Genome Editing Research: What Are Gamete Donors (Not) Informed About in Consent Forms?

    Part of The CRISPR Journal, p. 52-63, 2020.

    Open access
  • Fernow, Josepine; de Miguel Beriain, Inigo; Brey, Philip; Stahl, Berndt

    Setting future ethical standards for ICT, Big Data, AI and robotics: The contribution of three European projects

    Part of Orbit Journal, 2019.

    Open access
  • Quian, Wang; Yuyi, Cao

    人工智能时代“用心”思考的价值

    Part of Journal of Dalian University of Technology (Social Sciences), 2019.

  • Slokenberga, Santa; Howard, Heidi Carmen

    THE RIGHT TO SCIENCE AND HUMAN GERMLINE EDITING. Sweden, its external commitments and the ambiguous national responses under the Genetic Integrity Act

    Part of Förvaltningsrättslig Tidskrift, p. 199-222, 2019.

    Open access
  • Canellopoulou-Bottis, Maria

    The Greek Law on Genetics and Genomics - An Overview and Outlook for Future Perspectives

    2018.

    Open access
  • Canellopoulou-Bottis, Maria

    The Greek Law on Human Enhancement

    Open access

Book chapters

  • Niemiec, Emilia; Howard, Heidi Carmen

    "Genethics" and Public Health Genomics

    Part of Applied Genomics and Public Health, p. 243-257, 2020.

Newsletters from the SIENNA project

SIENNA issues e-mail newsletters for each of the technology domains the project covers. You can access previous issues below, and subscribe to future mailings here.

Blog posts