Programme

The SIENNA final confernece was held between 10-12 March 2021. Over three days, we addressed instruments like regulation, innovation policies, research ethics frameworks, Ethics by Design methodologies, education and training progammes, standards, and certification. Here, we will present and discuss results of the 3,5 years of work that the SIENNA project has conducted. The conference consisted of four parts, which could be attended separately.

Wednesday, 10 March

13:00-14:00 CET Introduction to the SIENNA  project

13.00	Introduction to the SIENNA project and the workshop Philip Brey, Professor of Philosophy of Technology, University of Twente With a word of welcome by Isidoros Karatzas, Head of the Sector for Ethics and Research Integrity, European Commission
13:15	Brief overview with key finding: AI & robotics, human enhancement, human genomics, and general approaches Anaïs Resseguier, PhD, Senior Research Analyst, Trilateral Research Yasemin J. Erden, Assistant Professor, University of Twente Amal Matar, MD, PhD, Post Doc, Centre for Research Ethics & Bioethics, Uppsala University Philip Brey, Professor of Philosophy of Technology, University of Twente

14:00-17:00 CET Human Genetics and Genomics: Ethical, legal and human rights challenges

14.00	Introduction Mats Hansson, Senior Professor of Biomedical Ethics, Centre for Research Ethics and Bioethics at Uppsala University
14.05	Keynote: What benefits may genomic science provide for patients in the short and medium long time perspective? - some examples Anna Falk, Associate Professor of Stem Cell Biology, Department of Neuroscience at Karolinska Institutet, Stockholm.
14.35	Q&A
14:45	Keynote: What would patients and patient organisations need regarding the regulation of genomic research? Tamara Hussong Milagre, President of the patient association EVITA - Hereditary and member of ePAG Council at European Reference Network GENTURIS, Lisbon, Portugal
15:15	Q&A, biobreak
15:30	Keynote: Research and human rights from a privacy perspective: in benefit of the patient? Olga Tzortzatou, Attorney at Law, Biomedical Research Foundation of the Academy of Athens (BRFAA), Greece
16:00	Q&A
16:10	Proposal of a Code of Conduct for genomic research Amal Matar, MD, PhD, Post Doc, Centre for Research Ethics & Bioethics, Uppsala University
16:40	Bringing ethics reflection back to researchers - Concluding remarks Mats Hansson, Senior Professor of Biomedical Ethics, Centre for Research Ethics and Bioethics at Uppsala University
17:00	End

Thursday, 11 March

09:30-12:30 CET Human Enhancement: Ethical, legal and human rights challenges

09:30	Human enhancement ethical analysis, including Q&A Philip Brey, Professor of Philosophy of Technology, University of Twente
10:30	Break
10:40	Human enhancement: ethics guidelines, regulatory and policy recommendations, including Q&A Yasemin J. Erden, Assistant Professor, University of Twente Konrad Siemaszko, Lawyer, Helsinki Foundation for Human Rights
11:40	Panel discussion: future strategies for human enhancement, ethics and human rights Lesley-Ann Daly, CyborgNest Christopher Coenen, Karlsruhe Institute of Technology Marc Roux, President of  the Association Française Transhumaniste - Technoprog Yana Toom, Member of European Parliament, STOA member
12:30	End

13:30-17:30 CET Artificial Intelligence and Robotics:  Ethical, legal and human rights challenges

13:30	Introduction and key findings Anaïs Resseguier, PhD, Senior Research Analyst, Trilateral Research
14:00	The SIENNA multistakeholder strategy for ethical AI and robotics, with Q&A Philip Brey, Professor of Philosophy of Technology, University of Twente
14:30	Break
14:40	AI and robotics: regulatory and policy recommendations Rowena Rodrigues, PhD, Senior Research Manager, Trilateral Research
15:25	Break
15:40	AI and robotics: instruments for ethical guidance - Research ethics framework - Ethics by design - Ethics as attention to context for AI Philip Brey, Professor of Philosophy of Technology, University of Twente Brandt Dainow, PostDoc, University of Twente Anaïs Resseguier, PhD, Senior Research Analyst, Trilateral Research
16:25	Break
16:40	Panel discussion: strategies for future ethical and human rights challenges of AI and robotics Cornelia Kutterer, Senior Director on Microsoft’s European Government Affairs team in Brussels Lee Hibbard, Council of Europe and DiploFoundation Clara Neppel, Senior Director of the IEEE European office Vidushi Marda, Article 19 and Carnegie India
17:30	End

Friday, 12 March

13:00-17:00 CET Governance of emerging technologies: incorporating ethics and human rights

13:00	Keynote: Toward the Comprehensive Governance of the Bio/Digital Revolution  Wendell Wallach, Yale University and The Hastings Center, USA
14:00	Introduction to a general governance approach Philip Brey, Professor of Philosophy of Technology, University of Twente
14:20	Break
14:40	Dimensions of responsible governance I, including Q&A - Multistakeholder approach - The role of ethics guidelines  - Ethics by Design  Philip Brey, Professor of Philosophy of Technology, University of Twente Yasemin J. Erden, Assistant Professor, University of Twente Brandt Dainow, PostDoc, University of Twente
15:45	Break
16:00	Dimensions of responsible governance II, including Q&A - Connecting ethics and policy  Nicole Santiago, Senior Research Analyst, Trilateral Research
16:20	Roundtable discussion: Ethics, human rights and the challenge of future emerging technologies  Wendell Wallach, Yale University and The Hastings Center, USA Anaïs Resseguier, PhD, Senior Research Analyst, Trilateral Research Nicole Santiago, Senior Research Analyst, Trilateral Research Amal Matar, MD, PhD, Post Doc, Centre for Research Ethics & Bioethics, Uppsala University
16:50	Closing words Albena Kuyumdzhieva, Programme Manager Ethics and Data Protection, European Commission Philip Brey, SIENNA coordinator
17:00	End