Research ethics codes and guidelines for human enhancement

The SIENNA project's ethical guidelines for human enhancement research and development have just been published in Science. They cover a broad range of interventions, drugs, treatments and other technologies that can improve human abilities, that fall outside the scope of medical interventions.

Want to take a look at our ethical frameworks for AI & Robotics, Human Enhancement and Genetics & Genomics? The last of the SIENNA project's reports were recently made public on Zenodo and are now available for download!

SIENNA was announced a champion project at the World Summit on the Information Society prizes award ceremony on 31 May 2022. The WSIS Prizes contest was developed after requests from stakeholders to create a mechanism to evaluate projects and activities that have leveraged the power of information and communication technologies to advance sustainable development in different ways. 

The SIENNA project has issued a series of policy briefs that have now been translated to Greek!

The European Parliament STOA panel organised a workshop on 23 March that took its point of departure from current discussion and legislative agenda in relation to artificial intelligence. Together with the SHERPA and PANELFIT projects, SIENNA helped move the discussion beyond AI to find out how can we build on what was learned from that discourse to prepare for the next wave of scientific and technological advances. Miss the workshop? The event was recorded and is now available for everyone to watch!

Technological developments and breakthroughs often bring shocking and spectacular changes to society. Highly complex, disruptive and transformative, they challenge human values, freedoms and societies. To maximise the benefit for society and minimise potential harms, we need to understand and address the ethical and social implications of new and emerging technologies. Making sure we are not forgetting marginalised and vulnerable populations. As the SIENNA project ends, a new Horizon2020 project begins. Building on our results to bring ethical and societal values into the design and development of new and emerging technologies. Want to know more? We suggest you sign up to the TechEthos newsletter and follow them on Twitter!

On 5 March 2021, the SIENNA project organised a webinar to present and discuss outcomes from our work on addressing societal concerns in public research funding. Miss the webinar? Don't worry, a recording of the presentation by Nicole Santiago is now available!

Some human enhancement is controversial socially and morally. They promise the advancement of humanity, but also introduce serious risks to health and well-being, freedom, and equality. Human enhancement research and development can be missed in ethical and legislative review. The field is broad, and enhancement potential can be difficult to predict, especially if such potential is not actively sought. In all cases, guidance is needed. The SIENNA project just published a policy brief that aims to addresses the need for policies aimed at ethical guidance for research, development and deployment of human enhancement technologies.

The SIENNA project ended on 31 March 2021. The results of our 3,5 year project were presented at a three day conference: Discussing the ethical and human rights issues raised by emerging technologies, and the methods and instruments propose to govern need for ethical guidance and governance of emerging technologies. We have recorded our presentations on regulation, innovation policies, research ethics frameworks, Ethics by Design methodologies, education and training progammes, standards, and certification. Did you miss the event? Don't worry! We recorded it!

Human genomics, human enhancement, artificial intelligence and robotics offer benefits for both individuals and society. But these technologies also challenge human rights and our notions of what is ethical. SIENNA has developed frameworks and proposals for the ethical management and legal regulation of human genetics and genomics, technologies for human enhancement, artificial intelligence and robotics. Interested to know more? We have published a policy brief summarising the key messages that can be drawn from the SIENNA project!

National policy-makers should ensure that any changes in legislation responding to AI and robotics are fit for purpose and in accordance with the country’s international obligations, especially with regards to human rights and societal values. There is need for legal clarity and guidance.

We invite you to an online event that takes its point of departure from the current discussion and legislative agenda of AI. Focusing on issues and challenges in need of particular attention, and how can they be addressed: Moving beyond AI to find out how can we build on what was learned from that discourse to prepare for the next wave of scientific and technological advances. The SHERPA, SIENNA and PANELFIT projects have been involved in developing the programme and panels, and now we invite you to join the STOA panel on 23 March!.

Both public research funders and researchers have an obligation to the public to ensure that research has a positive impact on society, which includes addressing concerns and mitigating potential harm. Societal concerns about new and emerging technologies relate to ethical, human rights, and socio-economic impacts – many of which were identified in the SIENNA project. Join us online on Friday, March 5 at 13.30 CET to discuss methodology for identifying and addressing societal concerns in public research on new and emerging technologies!  

Between 11-25 January the SIENNA project shared proposals for public consultation. The documents outline ways to suppor the ethical management of human genetics and genomics, technologies that can be used to enhance human abilities, artificial intelligence and robotics. The input will now feed into the reports we submit to the European Commission. Want to know more? Join us on 11-12 of March when we present the results from the project at our final conference!

The SIENNA project is coming to an end. We invite you to an online event on 10-12 March where we will present and discuss our results and proposals for the ethical management of human genomics, human enhancement, artificial intelligence and robotics. And how the SIENNA approaches can be generalised to other new and emerging technlogies.

Monday 25 January is the last chance to give input in our public consultation on proposals for the ethical management of new and emerging technologies. Don't forget to submit your feedback on our documents!

New technologies challenge our notions of what is ethical. The SIENNA project has developed stakeholder informed proposals for the ethical development, deployment and use of new and emerging technologies. Between 11-25 January we invite you to a public consultation of a group of documents with concrete ethical guidance for human genetics and genomics, human enhancement, artificial intelligence and robotics! Want an invitation? Subscribe to our newsletter to make sure you receive information the minute the documents become available.

Neurotechnological developments could shift focus away from complexity and careful consideration of the human condition. In a recent paper, SIENNA’s Yasemin J Erden writes about the convergence of neuroscience, neurotechnology, psychiatry, and artificial intelligence for diagnostic processes. And how taking an over-optimistic approach to technology developments might result in a simplistic view on complex issues like mental illness and psychiatric disorder. 

Education and exercise can enhance our abilities. So can technology: in the form of implants, drugs, genetic enhancement or machines. This comes with ethical, legal and social challenges. On 14 December, SIENNA invites you to participate in a webinar on ethical guidelines for technologies that can, or could, be used to enhance human abilities. 

Until recently, human enhancement technologies were mostly science fiction. Today, implants, drugs and prosthetics are available to enhance human abilities. Despite intense discussions in society and academia, few efforts have been successful in establishing ethical guidance for the use and development of these technologies. Could now be a good time to develop such guidelines? SIENNA researchers are trying to find out. Curious? Download our report! 

SIENNA findings show that attitudes to human enhancement technologies and research on the genetics of human intelligence vary greatly across different economic, cultural, and social landscapes. One potential way to enhance human abilities, including our cognition, is by interfering in IVF processes. So far, the ethics debate has centred on gene editing using the CRISPR technique. However, there is not as much talk of embryo selection as a method for genetic human enhancement. In a recent publication, Marcelo de Araujo emphasises the need fill this gap. 

Implants, drugs, genetic enhancement and prosthetics can enhance human abilities. But using technology for human enhancement comes with ethical, legal and social challenges. As a society, we need to discuss the ethical questions of what is normal, what is natural, what is moral and what can be permitted. SIENNA asked 11,000 people in 11 countries what they think about technologies that can be used to improve human abilities. It turns out that South African, Greek and Brazilian respondents were most positive towards the use of different human enhancement technologies, while people in Germany, the US and France were more hesitant. Curious about what they think we should and should not enhance? Read our report! 

Although there are no international research ethics codes or guidelines for the broad overall topic of human enhancement, we have surveyed selected relevant codes and guidelines for technologies that can be used for this purpose. If you want to know more about specific angles on particular contexts, often national or focused on application areas, we are able to offer you a large body of codes and guidelines!

Want to better understand legal developments and regulatory approaches related human enhancement? The SIENNA project has documented and delivered a critical assessment of the legal issues raised by human enhancement technologies in and outside the EU. We looked at the national, EU and international level. If you want an analysis of EU law and international and regional legal orders in relation to human enhancement, we suggest you download our report!

We need expert and stakeholder input, because regulating new and emerging technologies raises questions that require broad discussion. The SIENNA project would like to invite join our webinars on 17 June 2020 to discuss how to enhance the legal frameworks for human genomics, human enhancement, artificial intelligence and robotics technologies. Depending on your area of interest, you can join one, two or all of them!

COVID-19 emerging as a global threat has states and civil society to taking radical measures to limit its spread. But, in spite of mounting evidence that climate change will also have devastating consequences for humanity over the next decades, governments and civil society have been far less engaged in adopting effective measures to avert dangerous climate change. Why?

Fake news have been around for a long time. As part of a postgraduate course on information ethics and law, SIENNA’s Maria Bottis at the Ionian University is organising a public online lecture with Rafael Capurro starting from his recent paper “Pseudangelia - Pseudangelos: On False Messages and Messengers in Ancient Greece”.

The SIENNA project has produced a legal analysis of issues and human rights challenges of artificial intelligence, robotics, human enhancement and human genomics technologies and studies of how they are handled in different jurisdictions. We now invite you to hear a presentation of the results in a webinar on 5 March 2020, at 2PM Central European Time! 

SIENNA has published a state-of-the-art review on human enhancement technologies. If you want to read about it, download it, and find out what else we have done and haven’t received the e-mail, you are not on our list. So go ahead and sign up to find out what we do! (or read it by clicking the link below).

The SIENNA team working on the ethical, legal and human rights issues of human enhancement technologies finished their state-of-the-art review of the field. The report offers overviews of the philosophical debate around the issue, of the existing and expected applications, and a socio-economic impact assessment of human enhancement technologies. SIENNA researchers also identified six subcategories of enhancement, all of which you can read about in the state-of-the-art report that is now available for download on the SIENNA website!

The SIENNA project wishes you happy holidays! In 2020, we will us the data we have collected so far to develop ethical frameworks for Human Genomics, Human Enhancement, AI and Robotics. Our work will also be translated to guidelines for researchers and innovators in industry and academia, protocols and operational guidelines for research ethics committees, recommendations for better legislation, and more!

Like in many other countries, there are no specific laws relating to human enhancement technologies in Greece. However, there is more general legislation that can be applied to human enhancement. Because of this lack of legislation, the Greek Commission on Bioethics has issued two separate Opinions on Human Enhancement. In a pre-print article in SSRN, SIENNA legal scholar Maria Canellopoulou-Bottis from the Ionian University in Greece presents the Greek law on human enhancement.

Today, work package and task leaders from the SIENNA project are in Brussels to present our work to the H2020 project officer and an expert external reviewer. We are looking forward to this opportunity to review what we have done so far, and receiving feedback to improve what we do in the future.

The ENERI project is coming to an end. On October 28-29, they will bring together leading ethics experts, researchers, policy makers, representatives from industry, research funding organisations, civil society and other stakeholders to disseminate the concepts and products developed during the three-years term of the project. SIENNA will be represented in a panel with other SwafS RE and RI projects.

Planning for the future and moving the project forward. 24-25 September, we met in Paris to discuss SIENNA impact and sustainability... Have a look below to learn what we talked about! 

Right now, members of the SIENNA consortium are meeting in Paris to decide how we move from collecting and analysing data to developing ethical frameworks and codes. We will also discuss how to ensure that we deliver outputs that stakeholders in human genomics, human enhancement, artificial intelligence and robotics both want and are able to use.

The SIENNA and SHERPA projects are issuing a call for papers for a track on ethics by design at the 4TU Ethics Biannual Conference entitled "The Ethics of Disruptive Technologies" at TU/Eindhoven, The Netherlands, on November 7-8, 2019. Deadline for submission has been extended until July 1!

How much should we be allowed to shape your children? And what are the ethical an social questions that arise from enhancing young people? Lately, discussions on “neuroenhancement” have become relevant, both in academia, medical practice and among the public. A recent book edited by Saskia Nagel offers a unique collection of articles on pediatric neuroenhancement.

Education and exercise can enhance our abilities. So can technology: in the form of implants, drugs, genetic enhancement or machines. This comes with ethical, legal and social challenges. As a society, we need to discuss the ethical questions of what is normal, what is natural, what is moral and what can be permitted.

SIENNA partners have completed their research on legal developments and human rights challenges related to human enhancement technologies. We have covered the legal developments on the international level and in the EU, and completed 12 country studies of the national level, looking at the relevant laws and human rights standards. 

Besides input from experts, the SIENNA project is committed to include public opinion in our work. The results will inform the ethical evaluation and the development of ethics protocols and codes. On 27 April 2019, we ended our data collection. In all, we have completed telephone surveys with over 11,000 people in 11 countries and citizen panels in 5 countries. Now, the work to analyse the data begins.

Today and tomorrow, SIENNA consortium members meet experts and stakeholders in Athens to discuss the project's approach to ethical analysis. Participants will discuss methods and approaches to integrate stakeholder perspectives and public opinion in ethical assessments of new technologies.

Human enhancement is no longer science fiction. Developments in biomedicine and neuroscience demands practical discussion about its ethical, legal, and social implications. SIENNA uses a structured approach to examine the challenges to society. Check out our new infographic to find out more about the applications, benefits and concerns related to human enhancement technologies!

On 16-17 January, the SIENNA project arranged a foresight workshop on human enhancement. Stakeholders and experts spent one and a half days discussing the future ethical and impacts. A short report is coming, but for anyone interested, a recap of the event is available on Twitter.

Interested in the ethics and human rights issues in smart information systems? Join the SHERPA, SIENNA. PANELFIT, ORBIT projects and others in the IEEE Smart World Conference forum thisyear! Call for papers closing 26 April 2019.

Happy holidays from the SIENNA consortium partners in the Netherlands, China, Germany, Brazil, Poland, Greece, United Kingdom, France, Spain and Sweden, and our associate partners in Japan and the US.

In January 2019, SIENNA is organising three foresight workshops to discuss risks, impacts and ethical issues of AI and robotics, human enhancement and genomics with invited stakeholders.

Want to help bring ethical reasoning into the computer science curriculum? Don't miss the embedded EthiCS postdoc opportunity at Harvard University! Apply by January 15.

On November 8-9, the Helsinki Foundation for Human Rights is hosting the second SIENNA stakeholder workshop. This time covering the legal aspects of genomics, human enhancement, AI & Robotics.

SPEAKER: Roger Brownsword

November 7th
6.30 PM
Warsaw University, Lipowa 4 St.